About ANZORRG
Overview
The Australia and New Zealand Organ Replacement Therapies Registry Group (ANZORRG) is a collaborative research and registry network focused on improving outcomes in organ donation and replacement therapies across Australia and Aotearoa New Zealand.
Established in 2025, ANZORRG is based at the South Australian Health and Medical Research Institute (SAHMRI) in Adelaide, South Australia. ANZORRG is an independent program supported through collaboration with registry partners, professional societies, and clinical teams across the region.
ANZORRG connects registries and research to support data collection, analysis, and reporting. ANZORRG provides shared infrastructure, data platforms, and governance frameworks for multiple registries and projects, while building capacity for registry-based trials and national reporting.
Operational Oversight
ANZORRG’s operations are based at SAHMRI and led by the Executive Operations Team, which includes the Director of Strategy and Policy, Technical Director, Director of Analytics and Reporting, and Registry General Manager.
The Executive Operations Team, supported by the broader ANZORRG Leadership Team, provides oversight across key operational areas, including:
- Registry business operations
- Data intake and management
- Information technology and development
- Analytics and reporting
- Communications and compliance
- Research, equity, and access
Reporting Lines
ANZORRG’s activities and outputs are overseen by the ANZORRG Executive Operations Team, working under the strategic guidance of each Registry's Advisory Committees and Working Groups.
The Executive reports to SAHMRI for human resources, facilities, and infrastructure matters, and directly to Australian Organ and Tissue Authority and the New Zealand Ministry of Health according to funding agreement requirements.
Our Staff
Our team is made up of the ANZORRG Executive Operations Team, supported by the Leadership Team and dedicated portfolio leads who oversee key areas of registry operations, data, analytics, technology, and stakeholder engagement.
Meet our teamOur Values
To improve the quality of care and outcomes for people undergoing organ replacement therapies by:
- Collecting and analysing accurate and comprehensive data
- Producing and disseminating reports
- Informing development of practice, policy, and health services
- Working with stakeholders to improve the understanding of disease and outcomes of treatment
ANZORRG encourages and enables the highest quality of care for people in Australia and Aotearoa New Zealand by providing information that is complete, accurate, clear, relevant, readily available, and timely.
Recognising that the primary role of ANZORRG is to contribute to improvements in quality of care and outcomes for people
Providing a high-quality service to the patients, carers, health professionals, health organisations, policymakers, funders, and other interested parties so that consumers and health providers have access to, understand and make appropriate use of the data collected by each Registry
Collecting data and providing reports and analysis that are of the highest quality and reliability through a comprehensive strategy of data quality assurance and the use of appropriate statistical methodologies
Providing data, reports and analysis in a manner that is clear, precise and easily understood by stakeholders
Respecting the privacy of records held within each Registry and acting to protect the identity of individuals and health care services
Providing reports and data in an efficient and timely manner
Producing reports and analysis, and conducting interactions with stakeholders in a manner that is honest, transparent, and responsible
Continuously improving the quality of our activities and frequently updating policies and practices to remain relevant to the needs of stakeholders
Operating in a manner that uses resources responsibly and ensures the long-term viability of each Registry
Our Partners and Contributors
ANZORRG is built on strong partnerships with funders, contributors, professional societies, and community stakeholders across Australia and Aotearoa New Zealand. We gratefully acknowledge the ongoing support of all those who contribute to our registries and research.
Each registry within ANZORRG has its own community of clinical contributors, collaborators, and funders. You can find more information on registry-specific partners and contributors on each registry’s homepage.
Major funding for our registries is provided by the Australian Government Department of Health, Disability, and Ageing through the Australian Organ and Tissue Authority, as well as the New Zealand Ministry of Health. We also receive support from the wider Australian and New Zealand organ replacement community, professional societies, and research grants.
We particularly acknowledge the collaboration and support of:
- The Transplantation Society of Australia and New Zealand (TSANZ)
- The Australian and New Zealand Society of Nephrology (ANZSN)
- The Renal Society of Australasia (RSA)
- Kidney Health Australia (KHA)
- Vantive
- Astellas
- Australian Red Cross Lifeblood OrganMatch
- New Zealand Blood Service
We thank the clinicians, patients, consumers, and community members who guide and contribute to our work.
