For Community

Aotearoa New Zealand Resources

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OverviewLatest Infographics and ReportsPrivacy and SecurityRenal Unit MapOrgan Donation and TransplantationConsumer Engagement

Overview

Here you’ll find a range of resources designed for patients, families, and carers in Aotearoa New Zealand. These include infographics, summary reports, and other consumer-friendly materials that help explain registry data, organ replacement therapies, and health outcomes.

We also share useful resources created by healthcare services, community organisations, and research groups that are focused on supporting people affected by organ failure or organ replacement therapies in Aotearoa New Zealand.

Latest Infographics and Reports

2024 Aotearoa New Zealand ANZDATA Infographic

2024 ANZDATA Report: Chapter 9 - Kidney Failure in Aotearoa New Zealand

2024 ANZDATA Report: Chapter 11 - Kidney Failure among Māori in Aotearoa New Zealand

Privacy and Security

ANZORRG supports registries that collect information about people receiving dialysis, organ transplants, or tissue grafts in Aotearoa New Zealand. This information is collected in line with the NZ Privacy Act 2020 and securely transferred to the South Australian Health and Medical Research Institute (SAHMRI), where it is stored on a protected network.

We take privacy seriously. Personal information is kept safe and is only shared with ethics approval. The information helps health services, researchers, and government improve care, and any data shared does not include personal details.

If you have questions about ANZORRG, please speak with your healthcare team or contact the NZ Privacy Commissioner at www.privacy.org.nz or call 0800 803 909 (Monday to Friday, 10 AM – 3 PM).

Dialysis and Transplantation Patient Information Sheets

Adult Privacy Information Sheet
Download
Pictorial for Adults
Download
Parents - Information Sheet and Consent Form
Download
Under 11 years old - Information and Assent Form
Download
11 to 14 years old - Information and Assent Form
Download
14 to 16 years old - Information and Assent Form
Download
Pictorial for Children
Download

Living Kidney Donation

NZ Living Kidney Donor Privacy information Sheet and Consent Form
Download

Renal Unit Map

This map shows all parent renal units across Aotearoa New Zealand. Parent units are the main centres responsible for coordinating care for people receiving dialysis and transplant services, and they often oversee satellite dialysis facilities and support access to home therapies.

Useful Resources

Renal National Clinical Network

Developing national models of care to reduce variation and improve service access, quality and outcomes for people and whānau with kidney disease.

HealthInfo NZ – Living Organ Donation

Outlines how living donation works in Aotearoa New Zealand, including eligibility, surgery, recovery, risks, and emotional considerations, to help donors and recipients make informed decisions.

HealthInfo NZ – Deceased Organ Donation & Transplants

Explains how deceased organ donations work in Aotearoa New Zealand, including how organs are allocated via a waiting list, eligibility criteria, and the fairness of the transplant process.

Organ Donation New Zealand – FAQs

Answers common questions about organ and tissue donation. For example, what can be donated, eligibility, family consent, and how donation fits with medical care and funeral arrangements.

Organ Donation New Zealand – Donation Stories

Features personal stories from donors, recipients, and families in Aotearoa New Zealand, sharing their experiences, emotions, and the impact of organ and tissue donation.

Organ Donation New Zealand – Facts & Myths

Clears up common misconceptions about organ and tissue donation in Aotearoa New Zealand, covering eligibility, how the process works, and its impact on donors and recipients.

Consumer Engagement

Te Tāhū Hauora Consumer Hub (Ngā Pae Hiranga)

A one-stop resource centre offering Aotearoa individuals and whānau tools, guidance, and opportunities to shape health services through engagement, co-design, and voice.

Consumer and Whānau Engagement Quality and Safety Marker

This marker shows how health services engage with consumers, whānau, and communities in designing, delivering, and improving Aotearoa New Zealand's health system.