ANZDATA Data Collection

Every year ANZDATA surveys Renal Units, across Australia and Aotearoa New Zealand, on the incidence and prevalence of End Stage Kidney Disease Treatment and Outcomes

Patients who commence dialysis or receive a pre-emptive transplant are reported to the ANZDATA Registry in real-time

During the survey period, patients may change treatment modality. These include changes to treatment and therapy type such as in-centre, satellite, community or home haemodialysis, continuous ambulatory or automated peritoneal dialysis and deceased donor or living kidney donor transplantation. This data is collected in real-time

Outcomes of therapy are also reported in real-time and these include recovery of renal function, peritonitis episodes, transplantation, graft rejection and/or failure, incidence of cancer, parenthood, and death

At the end of the survey period all prevalent patients have a snapshot of their treatment reported. This includes biochemistry markers, dialysis regime and/or immunosuppression therapy

Provision of data for the previous survey period continues until all data returns are complete and validated. Queries may arise and units are contacted for consistency or audit. A locked dataset is prepared for analysis

Data is analysed and reporting outputs prepared for distribution to contributing units, stakeholders, funders, clinical sector and the general community