Data Management

Submit Data Request

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OverviewData Request Form

Overview

Data requests are initially reviewed by the ANZORRG Requests Committee, which comprises Biostatisticians, Epidemiologists, Clinicians and Administrators. Following this preliminary assessment, any missing or clarifying information will be requested from the applicant. The request is then referred to the appropriate committee for further review—this depends on the source registry and is guided by the governance arrangements specific to that registry.

More information about each registry’s governance structure and data request guidelines can be found on the registries page within this site.

The typical data request process can be found below. If you're unsure how to proceed, ANZORRG staff are available to provide guidance as you prepare your request.

ANZORRG Request Procedure Flow
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Submit a Data Request

To request data, please complete the form below or download the Data Request Form to help structure your submission before sending. Once complete, either:

Be sure to include a clear and detailed project description, and upload any relevant documents (e.g. prior publications on the same topic, research protocols, etc.).

Note: The release of de-identified data for research purposes requires approval from a registered Human Research Ethics Committee (HREC).

Data Request Form

Data Request for a Research Project Online Submission

At least one of the investigators should be a contributor. Advanced trainee projects require a supervisor

At a minimum should outline any previous registry publications on the same topic

Think “who, what, where, when” - be as precise as possible

Exposure(s); Confounders; Primary outcome; Secondary outcome(s)

This section must be completed with clear rationale prior to any data being released. It is strongly encouraged that you read the relevant documentation listed below prior to submitting your data request.

Please refer to the following guidelines when requesting patient ethnicity data:

Patient Ethnicity Guidelines

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