Aotearoa New Zealand Working Group
Overview
The Aotearoa New Zealand Working Group is made up of expert clinicians and researchers from across Aotearoa New Zealand who bring expertise in their respective fields, with a shared focus on kidney disease and its broader impacts. Members contribute their knowledge to guide the direction of ANZDATA’s data collection and ensure that the interests of Aotearoa New Zealand are represented within the registry.
The group plays an important role in maximising the scientific output of the registry by overseeing reporting, supporting research activities, and promoting collaboration within Aotearoa New Zealand.
Membership offers valuable opportunities for involvement in ANZDATA’s activities, collaboration, and academic contribution, while also requiring a strong commitment to active participation and responsibility for advancing the registry’s research and data processes.
Working Group Chair
Dr Katherine Richards
Aotearoa New Zealand Working Group Chair
Resources
Data Requests Involving Aotearoa New Zealand Data
We welcome research involving patients in Aotearoa New Zealand. In Aotearoa New Zealand, appropriate research conduct is guided by the Health Research Council of New Zealand (HRC) and the National Ethics Advisory Committee (NEAC). All health research using data from New Zealand patients is considered relevant to Māori. Both HRC and NEAC guidelines assist research teams to design projects that are culturally appropriate and responsive to Māori.
The CONSIDER statement (Consolidated Criteria for Strengthening Reporting of Health Research Involving Indigenous Peoples) provides a valuable reporting framework for health research involving Indigenous Peoples and is available on the EQUATOR Network website.
In practice, most research projects will require at least formal Māori consultation and ethical review by an ethics committee in Aotearoa New Zealand. The Aotearoa New Zealand Working Group can support researchers in working towards appropriate Māori consultation and review, and will review all data requests involving patients from Aotearoa New Zealand.
How to Request Registry DataLatest Projects
- Acute rejection in Māori and Pacific New Zealanders with kidney transplants patients in New Zealand
- Dialysis Capacity Modelling for New Zealand
- Factors associated with transition to home therapies for patients starting dialysis with temporary access (‘sub-optimal start’) in New Zealand
- Pregnancy outcomes for women in New Zealand who were previously kidney transplant donors
Resources Specific to Aotearoa New Zealand
Aotearoa New Zealand Patient ResourcesSubmit an EOI to join this group
To express your interest in joining this working group, please click the button below to submit a short cover letter and upload your resume.
Submit an EOI