Pregnancy and Parenthood Working Group

Overview

The Pregnancy and Parenthood Working Group is made up of clinicians, researchers, and consumer representatives who bring clinical expertise in their respective fields, with a shared focus on pregnancy, parenthood, and kidney disease. Members contribute their knowledge and lived experience to help guide the direction of ANZDATA’s data collection and ensure it remains relevant and clinically meaningful.

The group plays a central role in maximising the scientific output of the registry by overseeing reporting, supporting research activities, and promoting collaboration both within the group and with external contributors. They provide recommendations to the ANZDATA Advisory Committee regarding the ongoing development of registry activities and outputs.

Key responsibilities of the working group include reviewing the scope of data collected, generating and facilitating research, producing relevant chapters for the Annual Report, and presenting findings at scientific meetings. Membership offers significant opportunities for involvement in ANZDATA’s activities, collaboration, and academic output, but also requires a strong commitment to active participation and contribution to the registry’s research and data processes.

Working Group Chair

Prof Shilpa Jesudason

Pregenancy and Parenthood Working Group Chair

Introduction to the Parenthood Data Collection

Data Collection

Parenthood data has been collected by ANZDATA since its inception in 1968, providing valuable insights into reproductive outcomes for individuals with kidney disease. In 2017, this data collection was broadened to include more detailed obstetric and clinical information. The expansion aimed to gain a deeper understanding of pregnancy-related outcomes, maternal and neonatal health, and the impact of kidney disease and its treatments on parenthood. By capturing this additional information, ANZDATA has strengthened its ability to inform clinical practice, guide patient counseling, and support ongoing research in reproductive health for people with kidney disease.

Parenthood Outcome Data Collection Form

Submit an Expression of Interest

To express your interest in joining this working group, please click the button below to submit a short cover letter and upload your resume.

Submit an EOI

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