Pregnancy and Parenthood Working Group
Overview
The Pregnancy and Parenthood Working Group is made up of clinicians, researchers, and consumer representatives who bring clinical expertise in their respective fields, with a shared focus on pregnancy, parenthood, and kidney disease. Members contribute their knowledge and lived experience to help guide the direction of ANZDATA’s data collection and ensure it remains relevant and clinically meaningful.
The group plays a central role in maximising the scientific output of the registry by overseeing reporting, supporting research activities, and promoting collaboration both within the group and with external contributors. They provide recommendations to the ANZDATA Advisory Committee regarding the ongoing development of registry activities and outputs.
Key responsibilities of the working group include reviewing the scope of data collected, generating and facilitating research, producing relevant chapters for the Annual Report, and presenting findings at scientific meetings. Membership offers significant opportunities for involvement in ANZDATA’s activities, collaboration, and academic output, but also requires a strong commitment to active participation and contribution to the registry’s research and data processes.
Working Group Chair
Prof Shilpa Jesudason
Pregnancy and Parenthood Working Group Chair
Video Resources: Pregnancy and Parenthood in Kidney Disease
The Pregnancy and Parenthood Working Group is pleased to share the following video resources.
Dialysis can have a significant impact on fertility. A kidney transplant can help restore quality of life, including returning to work, study and family life. For many people of reproductive age, it also brings renewed hope of becoming a parent. However, around 80% report that clinicians have not discussed fertility, sexuality or parenthood with them, which can lead to the perception that having children is not possible during dialysis or after transplantation.
This gap in discussion reflects the limited information available on how dialysis, transplantation and immunosuppressive medications may affect conception, pregnancy and parenthood for people with kidney failure. While the ANZDATA Registry is a key international source of this information, reporting on pregnancy and parenthood outcomes is currently declining.
We are seeking your support to address this. By sharing information, you can help strengthen the evidence base and provide people with clearer information to support informed decisions about parenthood.
Introduction to ANZDATA Registry Parenthood Data Collection
Introduction to Recording Paternal Parenthood Events in Dialysis and Transplant Recipients in ANZDATA Registry
Entering Maternal Parenthood Events for Dialysis Recipients in ANZDATA Registry
Data Collection
Parenthood data has been collected by ANZDATA since its inception in 1968, providing valuable insights into reproductive outcomes for individuals with kidney disease. In 2017, this data collection was broadened to include more detailed obstetric and clinical information. The expansion aimed to gain a deeper understanding of pregnancy-related outcomes, maternal and neonatal health, and the impact of kidney disease and its treatments on parenthood. By capturing this additional information, ANZDATA has strengthened its ability to inform clinical practice, guide patient counseling, and support ongoing research in reproductive health for people with kidney disease.
Parenthood Outcome Data Collection FormSubmit an Expression of Interest
To express your interest in joining this working group, please click the button below to submit a short cover letter and upload your resume.
Submit an EOI