Pregnancy and Parenthood Working Group
Overview
The Pregnancy and Parenthood Working Group is made up of clinicians, researchers, and consumer representatives who bring clinical expertise in their respective fields, with a shared focus on pregnancy, parenthood, and kidney disease. Members contribute their knowledge and lived experience to help guide the direction of ANZDATA’s data collection and ensure it remains relevant and clinically meaningful.
The group plays a central role in maximising the scientific output of the registry by overseeing reporting, supporting research activities, and promoting collaboration both within the group and with external contributors. They provide recommendations to the ANZDATA Advisory Committee regarding the ongoing development of registry activities and outputs.
Key responsibilities of the working group include reviewing the scope of data collected, generating and facilitating research, producing relevant chapters for the Annual Report, and presenting findings at scientific meetings. Membership offers significant opportunities for involvement in ANZDATA’s activities, collaboration, and academic output, but also requires a strong commitment to active participation and contribution to the registry’s research and data processes.
Working Group Chair
Prof Shilpa Jesudason
Pregnancy and Parenthood Working Group Chair
Introduction to Recording Paternal Parenthood Events in Dialysis and Transplant Recipients
Dialysis has important impact on fertility for men and women. A kidney transplant can give people their lives back returning to work, study, and family. For many men of reproductive age, it also brings renewed hope of becoming an active, present father. Yet 80% say their clinicians never discuss fertility, sexuality, or parenthood, leaving some to believe that having children is no longer possible with dialysis or after transplant.
This silence exists because there’s still limited information about how dialysis, transplants and anti‑rejection medications affect pregnancies fathered by people with kidney failure. Even though the ANZDATA Registry is one of the world’s key sources of this knowledge, our data reporting on male parenthood is declining.
We’re asking for your help to change that. By sharing your information, you can help fill this gap and give men the clarity and confidence they deserve.
Introduction to the Parenthood Data Collection
Data Collection
Parenthood data has been collected by ANZDATA since its inception in 1968, providing valuable insights into reproductive outcomes for individuals with kidney disease. In 2017, this data collection was broadened to include more detailed obstetric and clinical information. The expansion aimed to gain a deeper understanding of pregnancy-related outcomes, maternal and neonatal health, and the impact of kidney disease and its treatments on parenthood. By capturing this additional information, ANZDATA has strengthened its ability to inform clinical practice, guide patient counseling, and support ongoing research in reproductive health for people with kidney disease.
Parenthood Outcome Data Collection FormSubmit an Expression of Interest
To express your interest in joining this working group, please click the button below to submit a short cover letter and upload your resume.
Submit an EOI